So, Bella had her hearing aid ear-mold-making appointment yesterday. It was pretty interesting. Terry and I got there earlier and the audiologist went through the information with us about her hearing loss and all that stuff. She went over bella's specific hearing loss as compared to other kiddos, and then she showed us graphs of it. It was all pretty informative and interested. Finally, Bella got to come into the appointment. Terry keeps insisting that she is ADD (which, I don't think she is!!) and so he brought that up in the conversation no less than 5 times. I was like - lets just see how this hearing aid thing goes, it could solve all of her issues!! I don't want to diagnose her as ADD if she's not (and last time I checked, he didn't have PH.D or MD after his name to do any diagnosis anyway!!)
So, Anyway, Bella picked pink hearing aids and pink ear molds with glitter. LOL. She loves them and can't wait to get them! We're all pretty excited... will post pics soon!!
Showing posts with label hearing impairment. Show all posts
Showing posts with label hearing impairment. Show all posts
Wednesday, December 10, 2008
Friday, November 21, 2008
And so it continues...
Last month Bella failed her first hearing test. Well, it wasn't her first hearing test, but it was the first one she failed. 3 doctors and multiple tests later, she has bilateral sensorineural hearing loss. We have a long way to go getting all this figured out - how much loss? how much is correctible? should we try to get cochlear implants? how will this affect her life?
MRIs, CAT Scans, ABR tests, and a myriad of other tests will provide us with definitive answers and a solution, of sorts... and in the meantime, I'm.....
Sad
Angry
Confused
Disappointed
Upset
Helpless
Afraid
Relieved...
and a roller coaster of other emotions. I'm so scared for her - how will this change her life? My first reaction was acceptance and immediately springing into action. The more I find out about hearing loss, the more I fear it for her. I think of what this means - she might not hear the cries of her first child when it's born. She won't hear Mozart's Requiem or my voice on the other end of her telephone as she gets older... and that makes me so sad.
I'm a torrent of emotions at this moment, the biggest being grief. She doesn't know, she's only 6, and she can't grieve for herself, but I hurt for her. I'm so afraid of how this is going to change her life and everything brings me to tears. I want to tell everyone and no one. I want the people I tell to react differently somehow, but I'm not sure how. I want to know exactly what this means for her, exactly how this is going to change her life, and none of those questions can be answered. I want to go ballistic on her school for not realizing this sooner, and I'm angry with myself for missing the obviousness of it all.
We are just starting down this road of discovery together, and I'm optimistic for her. I want this to be something that doesn't make her life harder, but that enhances the quilt of her life and makes it something a little bit different.
I have been through alot of things in my life - and I don't see them as bad or good, really... just things that have made me who I am and equpped me for who I would/have become. I believe everything happens for a reason - and I hold onto that belief. That there is a reason, whatever it is, and that everything is as it should be.
MRIs, CAT Scans, ABR tests, and a myriad of other tests will provide us with definitive answers and a solution, of sorts... and in the meantime, I'm.....
Sad
Angry
Confused
Disappointed
Upset
Helpless
Afraid
Relieved...
and a roller coaster of other emotions. I'm so scared for her - how will this change her life? My first reaction was acceptance and immediately springing into action. The more I find out about hearing loss, the more I fear it for her. I think of what this means - she might not hear the cries of her first child when it's born. She won't hear Mozart's Requiem or my voice on the other end of her telephone as she gets older... and that makes me so sad.
I'm a torrent of emotions at this moment, the biggest being grief. She doesn't know, she's only 6, and she can't grieve for herself, but I hurt for her. I'm so afraid of how this is going to change her life and everything brings me to tears. I want to tell everyone and no one. I want the people I tell to react differently somehow, but I'm not sure how. I want to know exactly what this means for her, exactly how this is going to change her life, and none of those questions can be answered. I want to go ballistic on her school for not realizing this sooner, and I'm angry with myself for missing the obviousness of it all.
We are just starting down this road of discovery together, and I'm optimistic for her. I want this to be something that doesn't make her life harder, but that enhances the quilt of her life and makes it something a little bit different.
I have been through alot of things in my life - and I don't see them as bad or good, really... just things that have made me who I am and equpped me for who I would/have become. I believe everything happens for a reason - and I hold onto that belief. That there is a reason, whatever it is, and that everything is as it should be.
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